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A Comprehensive Cancer Center Designated by the National Cancer Institute

Cancer Registry

Ranked #15 in the nation by U.S. News & World Report, the highest ranking institution in Illinois, our cancer program remains steadfast in our goal to provide the highest quality cancer care services to our patients and community.

The UCCCC Cancer Registry provides a full range of oncology data services for our nationally recognized American College of Surgeons (ACoS)-approved clinical cancer program. Since the 1920s, the Registry has collected, maintained, and reported detailed information for patients diagnosed with, and treated for, cancer or benign central nervous system neoplasms. A dedicated team of data management specialists ensures that records are maintained for patients at both the University of Chicago Medicine and the newly opened University of Chicago Medicine Comprehensive Cancer Center at Silver Cross Hospital. 

The Cancer Registry provides important data services to advance basic, translational, and clinical research at the UCCCC. All data collected by the Registry can be accessed via an electronic data repository, known as the Clinical Research Data Warehouse (CRDW). Researchers and clinical staff who request access to this resource are provided data in a safe, managed method that is compliant with HIPAA Privacy and Security Rules. Registry data are essential for not only advancing research to improve patient care, but also for cancer program development, community outreach activities, and decision-making in oncology and public healthcare policies. 

2011 UCM Cancer Data

Cancer Incidence by Type
In 2011, 3,660 patients were diagnosed and/or treated at the University of Chicago Medicine for a malignancy or benign central nervous system neoplasm (See Table 1).

Of these, the majority of patients (3,030, 83%) were newly diagnosed, and the remaining (630, 17%) had recurrent or progressive disease. The most frequently seen cancers were of the digestive system (642, including colorectal cancer), male genital system (556, including prostate cancer), breast (446), respiratory system (377, including lung cancer), and urinary system (315, including kidney cancer).

Patient Demographics
More than half of all patients (1,922, 52.5%) were diagnosed between the ages of 50 and 69 years. Distribution by gender reveals a higher number of male patients (1,947, 53.1%) than females (1,713, 46.8%). Distribution by race shows that our patient population is predominately white (2,347 patients, 64.1%), followed by African American (935 patients, 25.5%), and Hispanic (153 patients, 4.2%). These trends are similar to those seen in recent years.

Patient Geographics
The majority of patients (2,966, 81.0%) seen in 2011 were Illinois residents (See Figure 1), with the highest number residing in Cook County (1,860, 62.7%) followed by Will County (323, 10.9%), DuPage County (271, 9.1%), and Lake County (152, 5.1%).  

Nearly 19% (680 patients) of the total number of patients first seen in 2011 lived outside of Illinois, primarily in the neighboring states of Indiana (531, 78.0%), Michigan (58, 8.5%) and Wisconsin (26, 3.8%).

We also served 14 international patients from countries including Israel and Saudi Arabia (3 patients each), England, China, Palestine, Kuwait, Venezuela, Japan, Romania, and United Arab Emirates (1 patient per country).

 

Figure 1: 2011 Patient Residence at Diagnosis

Table 1: 2011 Cancer Cases by Site

Primary Site

Newly
Diagnosed

Recurrent/ Progressive Disease

Total

% of Total Cases

Digestive System                            

531

111

642

17.5%

Male Genital System                          

478

78

556

15.2%

Breast                                 

372

74

446

12.2%

Respiratory System

311

66

377

10.3%

Urinary System                                 

262

53

315

8.6%

Endocrine System*                                   

182

34

216

5.9%

Female Genital System                  

167

34

201

5.5%

Oral Cavity & Pharynx                                           

137

39

176

4.8%

Lymphoma                            

128

38

166

4.5%

Brain & Other Nervous System**                             

105

17

122

3.3%

Leukemia                               

124

28

128

3.7%

Miscellaneous***

46

10

56

1.5%

Skin (Excluding Basal & Squamous)

62

18

80

2.2%

Myeloma                                      

33

11

44

1.2%

Soft Tisue                                 

42

7

49

1.3%

Mesothelioma                                       

22

2

24

0.7%

Bones & Joints                                     

24

3

27

0.7%

Kaposi Sarcoma                                     

1

0

1

0.1%

Eye & Orbit                                     

3

2

5

0.1%

Total Cases

3,030

630

3,660

100%

* Includes benign pituitary tumors
**Includes benign neoplasms
***Includes blood dyscrasias, myelodysplastic syndromes, myeloproliferative disorders, and cancers with other histology/primary site designations

Note: The Cancer Registry reports on patients who were newly diagnosed and/or received their first course of treatment for cancer progression or recurrent disease at the University of Chicago Medicine. The total number of patients seen with cancer, including all consult visits, is higher.

 

Old cancer registry

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