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A Comprehensive Cancer Center Designated by the National Cancer Institute

Cancer Registry

The University of Chicago Medicine Comprehensive Cancer Center Cancer Registry provides a full range of oncology data services for our nationally recognized American College of Surgeons (ACoS)-approved clinical cancer program. Since the 1920s, the Registry has collected, maintained, and reported detailed information for patients diagnosed with, and treated for, cancer or benign central nervous system neoplasms. A dedicated team of data management specialists ensures that records are maintained for patients at both the University of Chicago Medicine and the newly opened University of Chicago Medicine Comprehensive Cancer Center at Silver Cross Hospital. 

The Cancer Registry provides important data services to advance basic, translational, and clinical research at the Comprehensive Cancer Center. All data collected by the Registry can be accessed via an electronic data repository, known as the Clinical Research Data Warehouse (CRDW). Researchers and clinical staff who request access to this resource are provided data in a safe, managed method that is compliant with HIPAA Privacy and Security Rules. Registry data are essential for not only advancing research to improve patient care, but also for cancer program development, community outreach activities, and decision-making in oncology and public healthcare policies. 

2014 UCM Cancer Data

Cancer Incidence by Type
In 2014, 4,287 patients were diagnosed and/or treated at the University of Chicago Medicine for a malignancy or benign central nervous system neoplasm (See Table 1). Of these, the majority of patients (3,592, 84%) were newly diagnosed, and the remaining (695, 13%) had recurrent or progressive disease. The most frequently seen cancers were of the digestive system.

Patient Demographics
More than half of all patients (2,262, 52.8%) were diagnosed between the ages of 50 and 69 years. Distribution by race shows that our patient population is predominately white (2,842 patients, 66.3%), followed by African American (1,078 patients, 25.1%), and Hispanic (196 patients, 4.8%). These trends are similar to those seen in recent years.

Patient Geographics
The majority of patients (3,449, 80.5%) seen in 2014 were Illinois residents (See Figure 1), with the highest number residing in Cook County (2,107, 49.1%) followed by Will County (493, 11.5%), and Lake County (140, 3.3%).  

Nearly 20% (838 patients) of the total number of patients first seen in 2014 lived outside of Illinois, primarily in the neighboring states of Indiana (618, 73.7%), Michigan (78, 9.3%) and Wisconsin (35, 4.2%).

We also served 10 international patients from countries including Argentina, China, Columbia, India, Mexico, Saudi Arabia and Puerto Rico.

Figure 1: 2014 Patient Residence at Diagnosis

Table 1: 2014 Cancer Cases by Site

Primary Site

Newly
Diagnosed

Recurrent/ Progressive Disease

Total

% of Total Cases

Digestive System                            

631

98

729

17.0%

Male Genital System                          

492

95

587

15.2%

Breast                                 

453

54

507

11.8%

Respiratory System

365

56

203

9.8%

Urinary System                                 

334

68

264

9.4%

Endocrine System*                                   

200

29

229

5.3%

Female Genital System                  

194

40

234

5.5%

Oral Cavity & Pharynx                                           

159

49

140

4.9%

Lymphoma                            

181

48

120

5.3%

Brain & Other Nervous System**                             

107

22

129

3.0%

Leukemia                               

152

40

120

4.5%

Miscellaneous***

73

22

95

2.2%

Skin (Excluding Basal & Squamous)

76

24

100

2.3%

Myeloma                                      

68

29

97

2.3%

Soft Tisue                                 

53

1

54

1.3%

Mesothelioma                                       

73

17

51

1.2%

Bones & Joints                                     

16

2

18

0.4%

Kaposi Sarcoma                                     

3

1

4

0.1%

Eye & Orbit                                     

1

0

1

0.0%

Total Cases

3,592

695

4,287

100%

* Includes benign pituitary tumors
**Includes benign neoplasms
***Includes blood dyscrasias, myelodysplastic syndromes, myeloproliferative disorders, and cancers with other histology/primary site designations

Note: The Cancer Registry reports on patients who were newly diagnosed and/or received their first course of treatment for cancer progression or recurrent disease at the University of Chicago Medicine. The total number of patients seen with cancer, including all consult visits, is higher.

 

Old cancer registry

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